Wednesday 22 April 2015

Sharing is caring.....

Fantastic article in the Telegraph today featuring the blog 'Written off' by Ellie Jeffery who passed away with secondary breast cancer in 2012. I used to follow Ellie's blog and she inspired me to look further than the end of my nose into all the alternatives, complementary medicines as well as the usual conventional treatments. It was Ellie that spurred me to write my own blog about my experiences and to chronicle them in a online diary. Sharing your story with the world might not help all the people but it certainly will help some of the people it is with this in mind that I continue to write this blog and share my views.

Here's the article /www.telegraph.co.uk/lifestyle/wellbeing/healthadvice/11549205/Too-many-patients-suffer-from-cancer-alone-needlessly.html

Tuesday 21 April 2015

Hemp Oil....its really gathering pace

Everyday there seems to be a new story relating to someone with any sort of cancer experiencing a complete turn around and tumour disappearance which they are attributing to the use of Hemp Oil. The more I think about it the more I reckon this is the reason I've been doing so well. I was at stage IV with only palliative care prescribed by the hospital. I am so grateful for my partner, brother and good friends that helped to make that first batch of hemp oil so quickly I was on it at the same time as chemo/herceptin and yeah initially I was spaced out, however it did make having chemo a lot easier to deal with I slept like a baby and didn't suffer as many nasty side effects as others claim to get. Hemp oil was in my system from about week 5 into my dx I continued to take it everyday for over a year as time passes your body does seem to tolerate the 'high' feeling you build up a resistance to that feeling.

I find it really strange that some would completely write off the possibility that this drug can and in some cases does work yet they would willing have chemo which is essentially a poison, obviously chemo works I know this first hand BUT how about being offered both hemp oil and chemo at the same time prescribed legal, clinically tested hemp oil. If you look at it like this ie: chemo is derived from plants I think the Yew tree is one such plant a highly poisonous tree the birds don't even eat the berries! Hemp oil is also derived from a plant which isn't poisonous at all its only downfall is that the powers that be deem it an illegal drug and make users criminals of course they would say that because if this is indeed the wonder drug of our times then the government, pharmaceutical companies and charities wont want a simple plant that anyone can grow easily to be the cure for the biggest disease on the planet, it stands to reason they would want to hush it up so that they can continue to rake in the millions of pounds/dollars in revenue that cancer brings. By far the worse out of the three is the charities everyone does there bit, run for life, cake bake, etc etc etc all in the name of charity the money raised is pumped into research and ultimately to find a cure for cancer yet the very drugs they have developed are now being pulled by the government because they are too expensive to administer so people who would benefit from those drugs die as a result, I ask you WHAT IS THE FUCKING POINT? I will never raise any more money for these particular charities and certainly wont be lining there pockets with money so they can wave the carrot in front of my face then pull it at the last hurdle FUCK EM!

Hemp oil has got to be the only sane way forward, easy to grow and to process and now you don't even have to take it as a capsule you can make it into a suppository which apparently stops the 'high' feeling. So there you have it Hemp Oil the wonder drug of our time I recommend you keep your eye out for hemp and cancer related stories in the press they are filtering through I've decided to collect them and paste them on my dedicated hemp page not because I need to be convinced but to help others come to the same conclusion.

Still in two minds about this topic and need to look into it further then I urge you to watch this film 'Bud Buddies Project Sorm' its nearly 2 hours long but in the whole scheme of things 2 hours in your life isn't that long and could potentially change your mind on the use of Hemp Oil and your outlook on life.
Here's the link https://www.youtube.com/watch?v=58X5KhW80pw#t=6381 and another link to an article from The Independent (its not all Daily Mail articles that talk about cannabis and and hemp oil)
http://www.independent.co.uk/life-style/health-and-families/features/could-cannabis-oil-reverse-the-effects-of-cancer-9934577.html
the next link is to the Bud Buddies official website which is a non-profit organisation that administer the oil free of charge.
http://www.cannabiscure.info/files/bud_buddies.htm

Sunday 19 April 2015

Back to business as usual.... Zoladex

Tomorrow I get my 2nd shot of Zoladex the first hit wasn't good and now I am dreading this next one. Its not the injection got over my fear of needles back in 2011 when having chemo and the continued Herceptin no its the size of the fucker. It's massive I mean this thing is huge. Of course now I know what to expect I am expecting horrendous pain urghhh life doesn't get any easier. The last shot did work immediately and stopped the dammed period and I haven't had any period pain since that last one so reckon it could of closed the ovaries down for good. Which would be a blessed relief and one less trip to the hospital every month. Looking forward to going out with my best friend afterwards for a small shopping trip there's always a silver lining.

Update - Thanks to the Tamoxifen tire around my middle I didn't even feel the needle go in this time last time it did hurt, so all in all pleased with that. Suppose there's got to be some compensation for having a fat tummy eh!!!

Still weighing up the pro's and con's of having ovaries removed. Here's an interesting article in The Mail http://www.dailymail.co.uk/femail/article-3031006/The-hell-surgical-menopause-s-not-just-Angelina-Jolie-women-opting-life-saving-operations-carry-cruel-price.html
which goes into the nightmare side effects of a forced surgical, early, menopause. I am and have been in menopause for the past 4 years ever since that first chemo injection the hot flushes have been horrendous this isn't just a little bit of heat its a full on pressure cooker on fire, turning bright red in the face so everyone looks at you with that quizzical "whats wrong with you" face on, the sweat pouring down your face, feeling really sick so bad I have to take anti-sickness meds, sticking my head in the freezer is about the only way of relieving the effects and I'm 4 years down the road. I'm wondering if I do have my ovaries out if the menopausal side effects will continue or even dare I say it get worse!!!! All considerations and questions to ask Onc. as well as possibly asking to have other massive breast removed as I feel so out of balance and hate hate hate the remaining breast. Lots to ask on the next appointment.

IF YOU DON'T LIKE IT THEN JOG ON..........

My my I am popular today...... had an infuriating patronising afternoon message from a not very nice someone who shall remain anon. Giving me a right telling off...... Madam.... for expressing MY views on MY fucking blog. A particular post got right up someone's nose and they've been stamping there feet all over the fucking place!!! I stand by that post and what I said I didn't mention names so its between me and them and they know who they are. I didn't retaliate at the time because I didn't want to get into a heated debate online so I voiced my view on MY blog, which I am perfectly entitled to do and will continue to do so.

Have to say if you don't like what your reading then go somewhere else. This is a personal blog and I have placed warning's all over the place regarding the sometimes angry, upsetting outbursts not too mention the swearing, let me put it quite simply and as the title of this post say's IF YOU DON'T LIKE IT THEN JOG ON. I'm not going to apologise for anything I've said and would like to point out that I'm not the Katie Hopkins of secondary breast cancer, I'm a normal person with an abnormal disease who uses this blog as a way of  expressing, venting, and sometimes sharing and advising on my experience of the disease thus far. I would never tell anyone what to think or expect them to change their views because of something I've said, we are all adults and should be able to make up our own minds. I believe every view is relevant and we should leave no stone unturned in relation to our health and cancer the alternative is not worth thinking about.

This is all I am going to say on this matter and shall continue to divulge any RELEVANT information I have come across via this blog (I am no longer a member of the group that shall remain nameless).

Thursday 9 April 2015

The Estrogen Effect (EE)

Ok so been up since stupid o'clock with usual migraine to greet the day Nice NOT!!
However, the plus side to being awake at this un earthly hour is you see some cracking sunrise's and you think a lot. This morning brain wave was about Estrogen and what I've noticed so far in relation to estrogen rich cancer (cancer cells that feed off of it ie ER+ my path is 4/8). It doesn't make any sense as a female your body produces estrogen it not only informs your gender its beneficial to bone health and a  load of other very important things. So why has my body decided to use the very thing that makes me a woman to feed the rogue cells???? I suppose its the million dollar question isn't it but it just doesn't make any sense at all, its not pro life in any shape or form. A few other things I've noticed about estrogen are:

When on Tamoxifen or any other estrogen blocker my mood is better I mean its really better I am happy smiling and content even though I should be depressed cause I've put on 5 stone and don't look like myself anymore YET I am happy.

The last point was tested when I all of a sudden had a period last month (first one in 4 years) just prior to the period my partner noticed that I was visibly spotty, moody, angry, depressed and generally down in the mouth he said "its like you were before you got cancer" this statement kind of took me back, when I thought about it I wasn't very happy or upbeat before cancer I was very very depressed. So it's got me thinking that if its such a important part in making up who we are what sex why is it a case of can't live with and can't live without?

What Estrogen doe's for your body?
It's a chemical messenger carrying information and instructions from one group of cells to another. In the human body, hormones influence almost every cell, organ and function. they regulate our growth, development, metabolism, tissue function, sexual function, reproduction, the way our bodies use food, the reaction to our bodies to emergencies and our moods. In more detail they:
Feeds your bone's
Determines metabolic rate (how well you burn off fat)
Informs your body how to regulate your heat
Is the most feminine of all the hormones helps us to have babies and feed them on milk
Personally makes me feel like shit, depressed, angry, moody not happy, spotty chin and jaw line

If you block or stop estrogen what are the repercussions?

Brittle Bones and Joint Pain (Osteoporosis)
Ageing (in my case prematurely due to early menopause)
Weight Gain urghhh...........
Hot flushes again urghhh.......
Facial hair (thankfully I've not experienced this joy)
Unaturally Happy moods even in the face of death!!!

I'm calling this the Estrogen Effect any thoughts on this please share in a message.
xx



Sunday 5 April 2015

FFS!!!

A tad annoyed...... I feel like I am being victimised verbally on FB at the moment I've posted a couple of articles that were of interest to me and thought I'd share with the research group on FB the response I got was some what rude I was told and I quote "this information is just not valid". Uh well actually it is pretty fucking valid its a view point shared by millions the view that cancer is in some way related to and affected by our lifestyles and what we put into our bodies by way of nutrition. All I did was share a link to an interesting article about the immune system here's the link https://www.ihealthtube.com/aspx/viewvideo.aspx?v=254789042bfc9b3e it is important is it not that we explore all the avenues available to us in our quest to survive and thrive living with secondary breast cancer!!!! I don't expect everyone to agree with what I post or say but I do at least deserve to be heard and not made to feel like I am sooooooo wrong patronising me like they know everything well if your so fucking clever then why haven't you got a fucking cure yet ass hole!!! this is a shame cause potentially life changing views that others might at the least find interesting and at best want to follow up on wont be available to them as I am pulling myself from the stupid fucking group. 

I then progressed to share a couple of links to Kris Carr of Crazy Sexy Cancer and Dr David Servan-Schreiber of Anticancer A New Way of Life both of which have written books on the subject that they themselves suffer with Dr. David died a few years ago of his cancer but he lived and survived for 20 years with stage IV brain cancer. Kris Carr may have a rare slow growing cancer but she has lived and thrived by her juicing protocol for the past 10 years I find it hard to believe that some might think it helpful to find fault with such people I don't care that they might of made millions out of writing there books and pushing there philosophies that's not the fucking point the point is that the lifestyles they promote and still are have proved positive in the fight against dying early from fucking cancer.

I would also like to add in this post that I have known at least 25 women who have died from this vile, random bastard of a disease this is not some sort of game or competition its life or fucking death. Either you get active and research do everything possible to help yourself or you just listen to the Doctors like they are God!!! and do what they tell you to do. Its a case of doing a bit of both really of course looking after yourself is paramount to helping you heal as is throwing everything you got at this mother fucker of a disease. I am not going to engage in a war with people if they don't agree but don't put me down as not having a valid point and telling me to " please don't follow his ideas" WTF!! how dare she tell me what to fucking do, I am still here living breathing and fighting 4 years down the line I have armed myself with every type and kind of research humanely possible and I am fucking winning, the proof is in the fact that I am here screaming and shouting about it the lung mets have disappeared the liver stuff is all but gone bar 2 small mets that are continuing to shrink. Something is clearly working could be the juicing, could be the supplements could be the hemp oil or it could be the bacon sandwich I've just fucking eaten just don't tell me I don't have a valid point. End rant and gosh that feels a lot better

Having said that I also have had enough of people rubbing me up the wrong way so in future I wont post anything interesting and will just keep it all to myself and of course this blog so stay tuned if you want to read anything interesting and alternative.

After the ultra annoying afternoon with this particular FB group I have left and will not be returning anytime soon.